While his seizure activity is still extremely high (he's had 7 in the past 3 days and we ended up in the ER again on Friday night), today he has been seizure free and behaving so well!
This morning, I noticed a spark in his eyes. Life in his face. I kept looking at him trying to figure out what about him looked so different, but the only thing it was was that his face was suddenly filled with life. Filled with life as opposed to having a drugged out look. Sad, sleepy eyes and cheeks hanging low. Zero life in his eyes. Today, I saw a face that I haven't seen since his birthday and birthday party on Dec 4. I didn't realize it until I saw it today. And his little personality just shined today. He helped to clean up. He took directions so well. He understood and comprehended things that we didn't think he'd known well before this seizure activity started. Everything he said today, it was said in sentence form. No babbling or screaming while playing with his toys. Instead, he was repeating every thing that his talking Spiderman toy would say. We also caught him singing a song from Polar Express. Once he noticed us watching and smiling, he got bashful though :) We also were brave enough to take him out to Target knowing full well that all of this could change in a brief second right in Target's parking lot. But he walked into Target and got into the basket and sat there like a big boy. He's usually one to ask for every thing in sight and I had to stop at the video game section to grab a game for my nephews for Christmas. To get there, we had to pass the dreaded toy section. Jayden looked on very quietly, and even when we passed up the huge Toy Story shelves, he never screamed "I want that! I want that! I want that!" I seriously looked at Mike and said, "Wow, I'm impressed!" It's as if he knows Christmas is next week. LOL. We got into the checkout line and he saw his favorite piece of candy and he said "Mommy, I want this." He'd been so good in the store so I told him he could get it and he actually put it on the counter so the cashier could ring it up. Normally he pitches a fit if anything leaves his hands to be rang up. She rang it up and gave it back to him and he said "Thank you. Merry Christmas." WOW! I couldn't wipe the smile from my face. I was so proud. All evening, he's been soooo good. He even ate all of his dinner.
He hasn't gone to bed for the night yet, so I do know that this perfect day could take a turn at any unpredictable minute. But for now, I'm logging off so I can go look into those beautiful, sparkly eyes of his before he goes to bed for the night. I want to soak it all in because days like this have not been happening often around here! Thank you to all of my blog readers who have been sending prayers, advice, links, etc. I appreciate it all :)
ETA: I do feel that this is just proof that Jayden is definitely capable of doing well, behaving well, and learning well. The last neurologist told us that she thinks that the bad behaviors and learning issues are just "who he is". I disagree and feel that they are directly related to his seizures b/c when they were controlled, he was ok. Today was that ray of sunshine that tells me that he will be okay.
2 months ago